About us

Within this program we support medical institutions and social projects that help people with ALS. We’re raising funds to purchase rehabilitation equipment, dietetic therapy, breathing apparatuses etc., which are then supplied to the families. We provide financial support for careers’ services for unprivileged families and also consultations of certain specialists.

We provide educational support for our specialists – doctors, nurses, community nurses, and family members. We publish information – online, leaflets, brochures. This is strong support with ALS being such a rare disease and almost nobody knows what to do and how to do it correctly.

It is still scientifically unclear why people develop ALS. There are no means to slower or stop disease progression. There is no accurate data in Russia concerning amount of people with ALS. It’s not always clear on how to manage symptomatic therapy properly. We run studies which could help us increase the quality of assistance to ALS patients. We also participate in international projects.

The more people know about ALS problems the easier it will be to arrange help. We sponsor special informational projects with personal stories of people with ALS, arrange events to increase awareness and cooperate with the media through all year. June is typically the most active month — our ALS awareness month.

Volunteers is the most important growth engine in any project. With ALS visiting volunteers are especially important. They regularly visit patients’ families and help organize tight interconnection between all structures. Amongst volunteers there are also musicians and artists who help patients to relieve stress. We organize such groups.

Leading scientific and clinical neurology center in Russia, working with ALS for many years. In 6-th neurology department there are 300 ALS patients being monitored and treaded annually. The center runs studies of ALS causality, mechanisms, and new treatment options are being developed.

The biggest general hospital in Moscow. It provides fulltime stationary, consultative, and diagnostic help to patients with wide range of diseases. The hospital includes in-patient facility with 828 beds (including day hospital), diagnostic center, inter-district department of multiple sclerosis and inter-district department of paroxysmal events.

The hospital situated in Moscow was established by Moscow Patriarchy. Here is provided free medical care to unprivileged and socially unsecure patients from different regions in Russia. Starting from 2016, palliative care department works and admits neurological patients. ALS Service in Moscow is based in St. Alexis hospital.

This name includes 26 social projects, 90% of which run on donations. Those projects comprise wide specter of patients: lonely senile citizens, adults and disabled children, orphans, homeless and all, who need support. This service includes charity program “Breath”, within which we are raising funds to provide assistant breathing equipment for people with ALS.

This association of professional members of hospice service is nonprofit organization, uniting both companies and people to achieve helpful goals in palliative medical care.