We do all we can to change life of patients with ALS to a better one, so that they would have access to the best possible aid.
We also do everything we can for the families and carers. Other than that, we promote studies that will lead to eradication of ALS.
- Everything we do for people with ALS, their close ones and their carers we do from our hearts.
- We’re open for discussion and we value every personal input.
- We perform great due to our personal involvement and constant perfection.
- We respect and work with people of all backgrounds, culture or religion.
- We achieve our goals through open and transparent communication with all sides.
Documents and details
Full name: Charity Foundation for supporting people with ALS and other neuromuscular diseases LIVE NOW
Abbreviated name: LIVE NOW CF
Mailing address: post office box #4, for Blagotvoritelny fond “Zhivi seychas”, 127410, Moscow, Russian Federation
Legal address: 45, Bolshaya Semyonovskaya st., 107023, Moscow, Russian Federation
Actual address: 32, Nizhegorodskaya st., bld. 4, off. 117, 109029, Moscow, Russian Federation
Phone: +7 499 397 8443
INN (Taxpayer identification number): 7719417621
Account number: 40703810601040000037
Transit account: 40703978601041000017
Currency account: 40703978301040000017
Bank name: ‘Tsentralny’ branch office of VTB Bank (JSC VTB Bank)
Correspondent account: 30101810145250000411
General director: Olga Beketova
We’re raising funds and provide help within five major foundations’ programs. Certain fundraising is focused either on the whole project, or on certain things.
Educational projects and information
Increasing of awareness
The more people know about ALS problems the easier it will be to arrange help. We sponsor special informational projects with personal stories of people with ALS, arrange events to increase awareness and cooperate with the media through all year. June is typically the most active month — our ALS awareness month.
Our foundation is opened for cooperation and shared projects — we participate in certain events, initiated by someone else and we also arrange some event together. We’re also members of some social communities and organizations, which helps us with our goals. Below we list our foundations’ partners — those are organizations and communities with whom we are constantly cooperating.
The hospital situated in Moscow was established by Moscow Patriarchy. Here is provided free medical care to unprivileged and socially unsecure patients from different regions in Russia. Starting from 2016, palliative care department works and admits neurological patients. ALS Service in Moscow is based in St. Alexis hospital.