About us

Systematic and consistent efforts for improving the life of patients with ALS or other neuromuscular diseases are carried out under this program. The Fund supports patients and their families organizing good-quality care, medical and social assistance, promoting issues of public drug supply, offering medical and other equipment, providing psychological and informational support. We are helping medical and other organizations as well as social projects assisting people living with ALS or other  neuromuscular diseases. Interaction with state authorities is provided to develop and improve procedural legislation.

The programme provides financial assistance and conducts studies for the identification of causes of ALS disease, searching for a new care strategies and approaches to confront the symptoms of ALS.

Raising ALS awareness helps to scale up assistance for people living with ALS. Opportunity of forming public interest and drawing attention to the issue helps patients and their families cope with problems of living with ALS and other neuromuscular diseases. Forums, conferences, seminars, lectures, trainings, patient schools, round tables, debates and other cultural and educational events are organized. More information about ALS and details of Fund activities can be found on the website of the Organization — als-info.ru.

Volunteers are the main engine that drives our projects. This program tracks volunteer activities: engaging, adaptation, training, team building and coordinating of the volunteers willing to assist people with ALS (visitors, musical and art volunteers etc.), together with ones, who take an active part in Fund’s work.

Leading scientific and clinical neurology center in Russia, working with ALS for many years. In 6-th neurology department there are 300 ALS patients being monitored and treaded annually. The center runs studies of ALS causality, mechanisms, and new treatment options are being developed.

The biggest general hospital in Moscow. It provides fulltime stationary, consultative, and diagnostic help to patients with wide range of diseases. The hospital includes in-patient facility with 828 beds (including day hospital), diagnostic center, inter-district department of multiple sclerosis and inter-district department of paroxysmal events.

The hospital situated in Moscow was established by Moscow Patriarchy. Here is provided free medical care to unprivileged and socially unsecure patients from different regions in Russia. Starting from 2016, palliative care department works and admits neurological patients. ALS Service in Moscow is based in St. Alexis hospital.

This name includes 26 social projects, 90% of which run on donations. Those projects comprise wide specter of patients: lonely senile citizens, adults and disabled children, orphans, homeless and all, who need support. This service includes charity program “Breath”, within which we are raising funds to provide assistant breathing equipment for people with ALS.

This association of professional members of hospice service is nonprofit organization, uniting both companies and people to achieve helpful goals in palliative medical care.