Not to lose the ability to speak - Живи сейчас

Not to lose the ability to speak

The ability to speak and to be understood, to eat like everybody else, and most importantly, to avoid those crushing symptoms of respiratory failure – that is what person with ALS is capable of achieving after some time working with a professional speech therapist. This is exactly the quality of life we strive to maintain in «Live Now» foundation.

Dates of fundraising: January – February 2019.

Donation purpose: 62 consults of a speech therapist within 2 months.

Problem at hand

The ability to speak and to be understood, to eat like everybody else, and most importantly, to avoid those crushing symptoms of respiratory failure – that is what person with ALS is capable of achieving after some time working with a professional speech therapist. This is exactly the quality of life we strive to maintain in «Live Now» foundation.

Description of the project

Speech therapist is not a magician and is not capable of curing degeneration of motor neurons. Speech, swallowing and breathing will decrease as the disease progresses. The goal here is to help a patient to maintain those skills as long as possible.

«The sooner you start working with a speech therapist, the better, – says a speech therapist of the «Live Now» foundation Natalya Shirokova. – Even in cases with mildly affected speech, I equip my patients with a program they can follow on their own. This is proactive effort. Patients become aware of coming changes and they are ready to take action without delay». Vocal disturbances, growing hoarseness, coughing while swallowing, pronunciation difficulties, like the latter «r» – all those symptoms can occur up to several months after diagnosis.

Right now, we have 20 patients in the «Live Now» foundation who require speech therapist sessions. Price for one session is equal to Problem at hand

2000 rubles and every one of your patients require at least 3-5 sessions. In order to help all those in need of a speech therapist we require 165 600 rubles (gross) – this sum will be enough to cover 62 speech therapist sessions in two months. We need your help!