Media

23 Apr 2017
Philatrop Specially for “Philatrop” Planeta.ru has chosen useful presents and beautiful widgets to decorate crowdfunding events…...
20 Apr 2017
Eсho of Moscow It’s very cold in Tatyana’s room, window is always opened, otherwise she starts gasping for air…...
20 Apr 2017
Takie dels Twenty years ago she was diagnosed with ALS. Tatyana has decided to live every available day happily…...
12 Apr 2017
Philantrop Musical therapist from USA Alice Apreleva and curative education teacher Anastacia Beltykova will teach their audience how to...
06 Apr 2017
Miloserdie.ru In The Museum of Youth Movement in Ryazan an exhibition “Olga Sharova’s footpoint” will be opened on 6th of June…...
28 Mar 2017
Vesti.Medicina.ru Anna Kasyanova has shared details about ALS diagnosis, on how to help patients and their family, and many more with Vesti.Med...
24 Mar 2017
Fontanka.ru Yes, we can’t cure ALS yet, but there is a way to help these people – with the right care, correcting their symptoms, support...
22 Mar 2017
Psychologies When your life brings you an unexpected incurable disease it’s hard not to ask yourself: why? ...
22 Mar 2017
Miloserdie.ru Why does person with ALS need lift in the house: “When your muscles weaken even one tiny step becomes a problem. And when the...
13 Mar 2017
Pro-palliativ.ru Many issues around palliative care in Russia remain unsolved. The best example of this is…...
07 Mar 2017
Lenta.ru Why do doctors never prescribe opioid painkillers, but instead suggest…...
03 Mar 2017
Pro-palliative.ru ALS is considered a rare disease, but in Russia it is not included in corresponding lists, and that is why system…...
03 Mar 2017
ASI Media outlet and “Yadex.Kassa” have set up a mutual charity media project…...
03 Mar 2017
Vesti.Medicina.ru There are more than 300 000 people with amyotrophic lateral sclerosis in the world, and around 8 500 of them are Russians…...
28 Feb 2017
SBS The last day of February is traditionally celebrated as the day of rare diseases. Established by European organization…...