Live Now Foundation is about to start the first ever charity festival in Russia in support of people with ALS this June. This endeavor requires funds.
Experts say that there are 10—15 thousand people with ALS in Russia. Often, they die without even knowing their diagnosis since this disease is very rare and many doctors can’t recognize it. In ALS medical and social service of Live Now Foundation people with ALS can get all the information about their disease and receive a personal consult with specialists. Within two weeks, the ALS service aid at least 70 families, who face ALS. These two weeks of work cost 1 200 000 rubles.
Caring a patient with ALS is a hard work. Relatives really need to have the opportunity for a break. Here we fudraise to pay two substitute carers during one year. Each of them will help 5 families.