Эта конференция — наглядный пример эффективности мультидисциплинарного подхода к нашим пациентам, потому что каждый специалист представляет свой участок работы, и в комплексе это дает представление, как наиболее полно и правильно вести пациента с БАС
18.05 — 19.05
Conference 2022
About
The main expert event of the foundation, which has been taking place since 2016, serves as a unique platform for people with Neuromuscular Diseases and their loved ones to meet with medical specialists.
The conference will have two sections running simultaneously: one for patients and one for doctors. Simultaneous translation of the broadcast from English to Russian will be available.
2
days
of intense communication for specialists, people with ALS and everyone interested
27
reports
in the field of study and treatment of ADHD by Russian and International experts
>200
participants
will be able to attend the conference in person after pre-registration (live streaming will also be available)
Speakers
Thomas H. Bak
Cognitive neuroscientist
Sharon Abrahams
Professor of Neuropsychology
Elena Chudakova
Lawyer for Live Now Foundation
Natalya Lugovaya
Director General
Vadim Parshikov
Neurologist
Darya Hmelkova
Geneticist
Head of Bioinformatics Department, The Genetico medical center
Lev Brylev
Neurologist
Pavel Shestimerov
Chairman of Family Council
Program
May 18
Opening
10:00-10:40. “Live Now” Foundation’s Work, Projects, and Perspectives
Natalya Lugovaya, CEO of “Live Now” Charity Foundation
10:40-11:20. Results of Recent Clinical Trials
Vincenzo Silani, Professor of Neurology, Director of the Neurology Department and Neurology Laboratory at Istituto Auxologico Italiano in Milan, Scientific Director of the “Dino Ferrari” Centre for Neuromuscular and Neurodegenerative Diseases
11:20-12:00. International Clinical Trials in Russia
Speaker to be confirmed
12:00-12:40. Genetics of ALS. How to Interpret Genetic Testing Results?
Darya Khmelkova, Head of the Oncogenetics Department, Head of the Bioinformatics Department at the “Genetico” Center for Genomic and Regenerative Medicine
12:40-13:20. Gene and Cell Therapy for ALS
Lev Brylev, Medical Director of “Live Now” Charity Foundation
13:20-14:30. Lunch
Section 1
14:30-15:20. Cognitive Impairments in ALS
Sharon Abrahams, Professor of Neuropsychology, Coordinator of Graduate Studies, Deputy Editor of the “Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration” Journal
15:20-16:00. Topic to be confirmed
Speaker to be confirmed
16:00-17:00. How Decision Making Process Changes in ALS
Thomas Jeranymus Bak, Associate Professor in Psychology at the University of Edinburgh, Research Scientist at the Centre for Clinical Brain Sciences and Co-Director of the Bilingualism Unit, Cognitive Neurobiologist
17:00-17:30. How a Psychiatrist Evaluates the Capacity to Make Decisions
Speaker to be confirmed
17:30-18:00. Discussion on Decision Making in ALS
17:30-18:00. Reception
May 19
10:00-11:00. Differential diagnosis
Speaker to be confirmed
11:00-12:00. Prognosis of the course of ALS and MND
Lev Brylev, Medical Director of the “Live Now” Foundation
12:00-13:00. Breathing disorders in ALS and ways to correct them
Speaker to be confirmed
13:00-14:00. Difficulties in organizing assistance in regions (center for neuromuscular diseases)
Mansur Kutlubaev, Doctor of Medical Sciences, Associate Professor, Acting Head of the Department of Neurology at the Bashkir State Medical University of the Ministry of Health of Russia, Chief External Neurologist of the Ministry of Health of the Republic of Bashkortostan
14:00-15:00. Lunch
15:00-16:00. Frontotemporal Dementia in Russia: Clinical Picture, Diagnostic and Treatment Options
Yulia Shpilyukova, Researcher, Neurologist, PhD, Federal State Scientific Center for Neurology, Moscow
16:00-17:00. Drug therapy for ALS in real clinical practice depending on the stage of the disease
Vadim Parshikov, Neurologist at the Moscow Multiprofile Center for Palliative Care’s Mobile Respiratory Support
17:00-18:00. Topic to be confirmed
Speaker to be confirmed
18:00-18:30. Reception
10:00-10:30. “Complex Solutions” website to help patients.
Natalya Lugovaya, CEO of the “Live Now” Foundation.
10:30-11:00. Issues of legal capacity and delegation of authority.
Yelena Chudakova, lawyer for the “Live Now” Foundation.
11:00-12:00. Topic to be confirmed.
Speaker to be confirmed.
12:00-12:30. All about caring for seriously ill people. Home care school of the “Live Now” Foundation.
Anna Kozlova, home care nurse for the “Live Now” Foundation.
Elizaveta Karsakova, head of the Educational Projects for the “Live Now” Foundation.
12:30-13:20. Topic to be confirmed.
Speaker to be confirmed.
13:20-14:00. Use of sexual aids for people with disabilities.
Anna Grikevich, physical therapist, specialist in sexual health, founder of the female health platform bloomcare.ru.
14:00-15:00. Lunch.
15:00-16:00. Topic to be confirmed.
Pavel Shestimerov, chairman of the family council of the “Live Now” Foundation.
16:00-17:00. Topic to be confirmed.
Speaker to be confirmed.
17:00-18:00. Candid conversation: incurable diagnosis and physical intimacy.
Natalya Lugovaya, CEO of the “Live Now” Foundation.
18:00-18:30. Reception.
How to sponsor the conference
We can place a roll-up or a stand with product samples on the conference venue, place the company logo in the printed program and on the website, or suggest another form of participation. You can create an individual sponsorship package tailored to your goals and objectives.
Contact with us
