The Board of Trustees consists of Russian public figures who believe in the idea of the foundation and are ready to help it grow. The Board guarantees that the fund activities are engaged in accordance with the fund purposes and objectives.
“The Foundation means a lot for me. When you lose the person you love, it gives you a better understanding of people who face this disease”
“I believe that it’s possible even for this rare and terrible disease to build a system of help so that a person can live, not just survive. This assurance becomes stronger due to the people who work in the Foundation”
“I help the Foundation because every story of people with ALS tells about the fragility of life and the value of every moment”
“There was little known about ALS when my mom died 21 years ago. The diagnosis was made by an incredibly talented and сonscientious specialist. Since then the disease has not become less tough, and the cure remains elusive. Yet now lots of people, both doctors and volunteers, are struggling with this serious illness, helping the patients and their relatives to alleviate the suffering, to build a decent life despite the most difficult circumstances. The Live Now Foundation plays here a crucial if not the main role”
“I started to help the Foundation because I’ve been engaged in neuroscience for a long time. Therefore, entering the Board of Trustees became the next logical step”