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Our news and activities

IV Patients’ Conference on ALS: Our goal is to include assistance to people with ALS in the Russian health care system

The Live now Foundation held the Fourth Patients' Conference on ALS, where a new research on the use of the drug "Masitinib" and decoding the ... Read more

On April 10 children whose relatives live with ALS visited the Experimentanium

That was the second therapeutic meeting organized by the Live Now Foundation under a grant from RUSAL. ... Read more

Experts of the Clarins company trained women with ALS how to make SPA procedures

The third "School of Beauty" was held in March. It was attended by 11 people. ... Read more

The specialists of the ALS Care Service met an expert from the UK

On March 14, Sandra Winterburn met with the ALS Service's staff, their colleagues from Central clinical hospital of St. Alexis the Hospice Aid Fund "Vera". ... Read more

Families of people with ALS met spring in retro style

On March 18, volunteers and the Family Council of the Live Now Foundation organized a spring holiday for people with ALS and their loved ones. ... Read more

Greet Natalia Lugovaya, new general director of our Foundation!

Natalia Lugovaya became General Director of the Live Now Foundation. She has extensive experience in the field of NGOs. For several years, Natalia was the ... Read more

The project of spiritual and emotional support of people with ALS won the grant “The Orthodox initiative”

The project "Appreciate every moment", created by GAOORDI and the ALS Care Service in St. Petersburg, will allow to organize visits of Orthodox priests, prayers ... Read more

People with ALS living in St. Petersburg will be able to receive breathing apparatus at the expense of the city budget

On February 28, the round table dedicated to the international day of rare diseases was held in GAOORDI. The problems of providing medicines and rehabilitation ... Read more

The Live Now Foundation bought medical meal for ALS patients thanks to Dushevny Bazar vositors’ donations

On 10th December the biggest Russian charity market took place in Gostiny Dvor in Moscow. The Live Now Foundation collected 65730 rubles. And now we ... Read more

Our substitute cares trained in patronage care area.

The team of the Live Now Fondoution has grown: in the framework of the project "Patronage service for people with ALS" (for the implementation of ... Read more

Therapeutic meeting for children from families with ALS was held in the Aquarium

In the end of December our project "Leisure and therapeutic meetings for children whose relatives suffer from ALS" got a grant from RUSAL company. The ... Read more

ALS Care Servise staff attended six training courses and seminars

In February doctors, nurses, coordinators and other professionals of ALS Care Services in Moscow and St. Petersburg acquired new knowledge on nursing care, respiratory support, ... Read more

Our volunteer supervisors shared their experience

In the end of January Maria Ilchenko, development Director of the Live Now Foundation, together with the nurse of ALS Care Service in Moscow Yana ... Read more

Experts of the Live Now Foundation spoke at the international conference on music therapy

On February 3, Medical Director of our Foundation Lev Brylev and music therapy expert Alice Apreleva presented their experience in implementing music therapy in a ... Read more

The Live Now Foundation started the Patronage care School with support of the Moscow Committee of public relations

On January 27 the Patronage care School for relatives and caregivers was held. 10 people attended the class. This project is being implemented by our ... Read more